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| | | | Welcome to the
ShareForCures Newsletter!
| Dear ShareForCures Participants,
| We’re excited to welcome you to the very first ShareForCures Newsletter. We’re grateful to have you as part of our community.
| By choosing to participate in ShareForCures, you’ve taken an important step in advancing research. Your willingness to share your information will help researchers discover cures for breast cancer, faster. That impact starts with you.
| This newsletter is one of the ways we’ll stay connected. Here, you’ll find updates about ShareForCures, learn how participant contributions are making a difference, and see what’s ahead.
| Thank you for being part of this journey with us. We’re honored to partner with you in helping shape the future of research.
| With gratitude,
The ShareForCures Team
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1602
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Fully enrolled participants, from all 50 states,
DC and Puerto Rico
| A Closer Look at our ShareForCures Community
| Percent of Participants by State
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Breast Cancer Type at
| Initial Diagnosis*
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*Breast Cancer Type Abbreviations: IDC – Invasive Ductal Carcinoma; DCIS – Ductal Carcinoma In Situ; ILC – Invasive Lobular Carcinoma; IBC – Inflammatory Breast Cancer
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| | | | 810
| Quality of Life Survey
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As of 5/28/2026
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Your voice matters!
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Your participation is the foundation of this effort. By completing questionnaires, sharing medical information, and providing saliva for DNA analysis, you are powering research and driving new insights.
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Have you completed all assigned questionnaires?
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| | | | Help us reach our goal of 1,200 Quality of Life questionnaires completed!
| LOGIN now and help shape the future of our research!
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Participant Spotlight: Bob
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| “When I was first diagnosed, I often said that breast cancer in men was essentially the same disease as breast cancer in women. Today, we increasingly recognize male breast cancer as a distinct entity with its own molecular signature. ShareForCures will help us better understand the biology and, ultimately, develop more targeted treatments.”
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| | Bob grew up in Huntington, WV, and has lived in Ithaca, NY for many years. He was first diagnosed with Stage 2 invasive ductal carcinoma at age 40 in 1996. More recently, he was diagnosed with prostate cancer and learned he carries a CHEK2 mutation.
| Bob joined ShareForCures because he wants to advance understanding of breast cancer broadly and male breast cancer specifically.
| Connecting Bob with ShareForCures Data
| | • | 56.1% of ShareForCures participants were diagnosed with Invasive Ductal Carcinoma (IDC) at their initial diagnosis.
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| | • | 32.9% of participants received their initial diagnosis between the ages of 35 and 45.
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| | • | 1% of participants self‑identified as male assigned at birth.
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| | | | | | | | | June is Men’s Health Month!
Check Out Komen’s Male Breast Cancer
Facts & Statistics HERE!
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ShareForCures
| Research Corner
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Check out our first publication!
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Susan G. Komen’s ShareForCures: a patient-engaged, nationwide breast cancer research registry
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Jerome Jourquin, PhD, MS , James C Dickerson, MD, MS , Emily G Marks, MS , Jessica Epps, PhD , Kimberly Sabelko, PhD , Allison W Kurian, MD, MSc , Melissa L Bondy, PhD
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ShareForCures® research registry has been highlighted in the Journal of the National Cancer Institute, one of the world’s leading cancer research journals. This peer‑reviewed publication recognizes ShareForCures as a powerful, patient‑driven resource that is helping accelerate breast cancer research nationwide.
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The article highlights how participants like you are contributing self‑reported, clinical, and genomic information through an easy‑to‑use online platform—creating a growing, long‑term dataset that researchers can use to better understand breast cancer across diverse populations. By participating, you are helping ensure that breast cancer research reflects the real experiences, backgrounds, and voices of people affected by the disease—including communities that have historically been underrepresented.
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CLICK HERE TO READ MORE
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Researcher Spotlight:
Dr. Melissa Bondy, PhD
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| “Sharing is learning. Being able to do more with research will hopefully find a cure for this disease”
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| | Dr. Melissa Bondy is the ShareForCures Chief Scientist at the forefront of developing and implementing ShareForCures. She is also the inaugural chair of the Department of Epidemiology and Population Health and the Associate Director for Population Sciences at the Stanford Cancer Institute. She is an established cancer epidemiologist with a multi-disciplinary focus on translational research.
| Dr. Bondy believes that everyone’s personal journey through breast cancer matters. By participating in research and sharing their data, individuals can contribute to shaping the future of breast cancer treatment and prevention. Sharing data helps researchers identify risk factors, build better prediction models, tailor care plans, and discover more effective treatments for breast cancer.
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READ MORE ABOUT DR. BONDY AND
THE IMPORTANCE OF SHAREFORCURES
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| | | | YOU’RE INVITED!
Join our first ShareForCures Research Partner Series featuring Dr. Bondy!
| June 18th, 2026 at 12 P.M. CT
Virtual Webinar
| | Our first session features Dr. Melissa Bondy, offering a deep dive into research, shared priorities and what’s next through strong strategic partnership.
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Komen Resource Spotlight
| The Komen Patient Care Center
| Do you need help? We’re here for you. The Komen Patient Care Center is your trusted, go-to source for timely, accurate breast health and breast cancer information, services and resources. Our navigators offer free, personalized support to patients, caregivers and family members, including education, emotional support, financial assistance, help accessing care and more.
| Get connected to a Komen navigator by contacting the Breast Care Helpline at 1-877-465-6636 or email helpline@komen.org to get started.
| LEARN MORE
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Health and Wellness Research
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Connecting You to Komen’s Educational Resources
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| | | | | | Did you know? The About Breast Cancer section of the Susan G. Komen® website has the latest evidence-based information on breast cancer risk factors, screening, diagnosis, treatment, metastatic breast cancer, survivorship and more.
| Check out our evidence‑backed information on maintaining a healthy weight, staying active and tips for building healthier routines after breast cancer treatment: Healthy Lifestyle for People Who’ve Had Breast Cancer.
| This webpage highlights some of the habits shown to support long‑term health, from staying active to not smoking. It also breaks down what the research says about weight, alcohol, and other everyday factors.
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| The ShareForCures Unicorn!
| Komen wanted a way for ShareForCures to meet people out in the world — to spark curiosity and bring a smile to someone’s day while also starting an important conversation. That is how Hope was born.
| Hope is a costumed, inflatable unicorn whose name was chosen through a vote on Komen’s Instagram stories. Since making her debut, she has brought new energy and joy to ShareForCures, with positive feedback everywhere she goes.
| READ MORE
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COMING SOON:
| Participant Bulletin Board
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Our bulletin board celebrates the voices of our participants. We invite you to share your experience and photos with the ShareForCures community to be posted on our Participant Bulletin Board!
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Some ideas to share:
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| • | Komen spring event photos and stories
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| • | Photos with Hope the Unicorn
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| • | Health and wellness tips
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| • | Other photos and stories of life’s meaningful moments that inspire hope and remind us why advancing research matters
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SUBMIT HERE!
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