Everything you do makes a difference

Getting Involved

Read our blog on survivorship.

After treatment for breast cancer ends, you can continue to be a part of the breast cancer cause through research, community work or advocacy efforts.

Getting involved can be personally rewarding and can impact the lives of others.

Whether you enroll in a research study, serve as an advisor or volunteer for an advocacy group, you can make a difference. Being involved in any of these efforts makes you a part of the progress being made in the fight against breast cancer.

Getting involved in research

Joining a clinical trial for survivors

There are many clinical trials for people who have completed treatment for breast cancer.

Some research studies look at the long-term effects of breast cancer treatment on recurrence and other health issues.

Other studies focus on quality of life after treatment, the benefits of complementary therapies or the effect of lifestyle factors on breast cancer recurrence.

If you would like to join a study, talk with your health care provider. Your provider may be able to help you find a clinical trial (or other type of research study).

Susan G. Komen® in collaboration with BreastCancerTrials.org offers a custom matching service to help you find clinical trials that fit your needs.

Susan G. Komen® Breast Cancer Clinical Trial Information Helpline

If you or a loved one needs information or resources about clinical trials, call our Clinical Trial Information Helpline at 1-877 GO KOMEN (1-877- 465- 6636) or email clinicaltrialinfo@komen.org.

Learn more about clinical trials.

Serving as a reviewer or an advisor

Some organizations that fund or conduct research involve breast cancer survivors as advocates.

As a research advocate, you may review research proposals and work with researchers to design and implement studies.

The Komen Advocates in Science (AIS) program trains volunteers to be active in different types of research programs. It’s an exciting way to contribute to finding the cures.

AIS members ensure patient and co-survivor perspectives are part of decisions at every step of the research process.

Learn more about the Komen AIS program.

Serving as a member of an institutional review board

Institutional review boards (IRBs) ensure clinical studies follow federal guidelines related to research involving people. They also review informed consent materials.

Hospitals, academic centers, pharmaceutical companies and other groups that conduct clinical trials have IRBs. Breast cancer survivors are often included as members.

To see if an IRB is looking for community members, contact the research office of your local hospital, university or other agency funding breast cancer research.

Getting involved as an advisor or volunteer

Some organizations and government agencies have programs to benefit people diagnosed with cancer or to serve the community at large.

As a breast cancer survivor, you can get involved in these programs as an advisor for planning or oversight, or more directly as a volunteer.

Komen Affiliate Network

In more than 2,200 communities across the U.S., more than 75,000 Komen volunteers and staff work to help fund breast cancer screening, diagnosis, patient navigation, treatment and education programs for those who need it most. We help make it possible for people to receive lifesaving services every day.

Thanks to survivors, volunteers and activists dedicated to the fight against breast cancer, the Komen Affiliate Network is the nation’s largest private funder of community-based breast health education as well as breast cancer screening and treatment programs.

Up to 75 percent of every dollar raised by our U.S. Affiliates stays local to fund breast health outreach programs, as well as vital breast cancer screening and treatment assistance.

The remaining funds raised by the Affiliate (a minimum of 25 percent) support Komen’s national research program, which funds breakthrough breast cancer research to prevent and cure breast cancer.

To get involved, contact your local Komen Affiliate.

Getting involved as an advocate

Being an advocate for breast cancer awareness and research funding is one of the best ways you can make a difference as a breast cancer survivor.

Komen Public Policy and Advocacy

More than 41,000 women and men in the U.S. die each year from breast cancer. Komen is committed to doing everything we can to change that unacceptable reality, including mobilizing the voice of everyone affected by this disease to achieve lasting change through sound public policy.

Only through government action can we make the broad, systemic and lasting change we need to help us achieve our Bold Goal of reducing the current number of breast cancer deaths by 50 percent in the U.S. by 2026. By mobilizing our communities to take action, we can ensure the voice and needs of those with breast cancer and their loved ones are heard by policymakers and government regulators.

Learn more about becoming an advocate and make your voice heard.

Government agencies

Support government funding of research

The federal government, through the National Institutes of Health, funds much of the breast cancer research in the U.S.

Let your legislators know (with a simple phone call, letter or e-mail) you value breast cancer research. This helps ensure funding for cancer research is a priority.

Be an advocate in a government program

Federal health agencies as well as state and local health departments have ways for breast cancer survivors to get involved in cancer programs.

To find opportunities at the federal agency level, visit the National Cancer Institute.

To get involved on a local level, learn about programs in your community. Contact your local or state health department or visit the Centers for Disease Control and Prevention website (or call 1-888-842-6355) for a list of cancer programs in your state.

Other ways to get involved with Komen

Everything you do makes a difference

No matter how you choose to get involved, you will continue to make a difference in your own life and the lives of others.

These activities are not only personally rewarding, but they can also benefit many other people diagnosed with breast cancer and their families now and in the future.

Everything you do makes a difference.

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