The ShareForCures Alliance
Breast cancer research is evolving every day, driven by the power of real-world data and the individuals who choose to share theirs. Susan G. Komen’s ShareForCures is a revolutionary research registry connecting scientists with information from people who have or had breast cancer. Because every diagnosis is unique and personal, this data can help uncover patterns that improve treatments and speed up discoveries.
But breakthroughs are only possible when research reflects the full spectrum of the people affected. ShareForCures aims to encompass diversity in medical history, race, ethnicity, gender identity, geography and age at diagnosis. Too often, scientific research has overlooked the unique needs of communities of color. That’s where the ShareForCures Alliance comes in — a collaboration of organizations that ensures more voices are heard, more data is represented and more lives are improved.
For the Breast of Us: Representation, Redefined
One of the eight organizations in the ShareForCures Alliance is For the Breast of Us — the first-ever, inclusive online community for women of color affected by breast cancer. Co-founded by Black breast cancer survivors Marissa Thomas and Jasmine Souers, For the Breast of Us was born from a need to see everyone in breast cancer advocacy, education and support.
Breast cancer isn’t one-size-fits-all, and too often the stories, resources and research don’t reflect that. Women of color in the U.S. face higher mortality rates, delayed diagnoses, limited access to clinical trials and systemic barriers that affect their entire cancer experience. For the Breast of Us challenges these disparities head-on by creating space specifically for women of color to have honest conversations, community-building and action rooted in equity.
From their unapologetically bold campaign When You See Us storytelling series to resources like For the Breast of Us Blog, workshops, meetups and the impactful Breast Cancer BaddieCon: Survivorship Reimagined Advocacy experience, the organization amplifies the voices of Black, Latina, Asian, Indigenous and multiracial women navigating breast cancer, ensuring that these communities aren’t just included in the conversation but building their own.
Why Representation in Research Matters
When women of color participate in ShareForCures, they’re doing more than sharing data — they’re making sure that future research reflects their reality. Breast cancer outcomes won’t improve equitably unless researchers have access to data that includes diverse backgrounds, lived experiences and health journeys. That’s why For the Breast of Us joined the ShareForCures Alliance — to advocate for inclusive research and empower all communities to be seen and counted.
“For too long, women of color have been left out of the research that shapes how breast cancer is diagnosed, treated
– Marissa Thomas, Co-Founder & CEO, For the Breast of Us,and understood. At For the Breast of Us, we know that true equity starts with representation, and that includes clinical research. That’s why we joined the ShareForCures Alliance; to ensure that our stories, our data,and our lived experiences are no longer an afterthought but a driving force in the search for better outcomes. We’re showing up for the next generation of Breast Cancer Baddies, so they don’t have to endure the same inequalities alone.”
Rewriting the Narrative, Together
By working together through the ShareForCures Alliance, organizations like For the Breast of Us are helping to bridge the gap in research and resources for everyone facing breast cancer. When women of color participate in ShareForCures, they help fill this critical gap in data, ensuring that research reflects the full spectrum of breast cancer experiences. The more diverse the registry, the more impactful discoveries can be for people of all backgrounds.
Learn more about ShareForCures and join the registry today.
