Lakysha Laing learned she had stage 1A ER/PR-positive, HER2-negative breast cancer in 2018. This is her story in her own words.
As a breast cancer survivor, I’ve come to realize that survivorship isn’t just a label I wear; it’s a daily journey filled with ups and downs. Each day brings its own set of challenges and triumphs, and sometimes it feels like I’m navigating a minefield of uncertainty.
Something a Little Weird
In late summer 2018, I was watching a movie with my husband when my hand brushed across my chest. It was still hot out and I thought what I felt was a mosquito bite. I told my husband it felt a little weird, not really like a typical mosquito bite. He said maybe I should get it checked out.
Time for a Mammogram
Even though I was 45, I hadn’t yet gotten a mammogram because I was scared to, but I knew now I needed one. I called my gynecologist and was able to schedule an appointment with her. My doctor did a breast exam and felt something, too, and referred me for a diagnostic mammogram. I also had a breast ultrasoundand a biopsy.
A Breast Cancer Diagnosis
I knew something was wrong when I went for the biopsy results. Usually, my doctor would come in and sit across the room from me. On this day, he pulled a chair up and sat right in front of me. Once he did that, my body was just ready for a shut down. He didn’t waste any time, which I appreciated. He said, “We did find cancer.”
I blacked out. I couldn’t remember anything. I’m so grateful my husband was with me. He took notes and asked questions. I was just there.
Aggressive Treatment
I did an Oncotype DX® test, which tells you the likelihood of metastasis and the benefit of chemotherapy in addition to hormone therapy. Since I was premenopausal, if the Oncotype DX score was higher than 26 both chemotherapy and hormone therapy would be recommended. My score came back as 56, so my treatment plan was aggressive.
My surgery was a lumpectomy because of the size of the tumor. The lumpectomy has caused a lot of issues because of a seroma (buildup of fluid) and cysts that developed on my nerves and chest wall, so I’m contemplating a partial mastectomy.
I did eight rounds of chemotherapy followed by 30 rounds of radiation, targeted and full breast. I did physical therapy to help me regain my range of motion – I had a frozen shoulder. In the middle of that, I developed lymphedema. Both of my arms swelled up. Now it’s mostly fine, but I notice if I lift things or sit too long it comes back, and then I do exercises they taught me.
Because of my recurrence score, I also had a full hysterectomy to minimize chances of being diagnosed with other types of cancers. I was on an aromatase inhibitor, Arimidex, for five years. Testing showed that I could stop it after five years, so I did.
A Reminder My Body Needs Attention & Respect
With every little change in my body, like the raised skin that makes my heart skip a beat, wondering if it’s a recurrence; I’m reminded that life is fragile. Lymphedema can strike unexpectedly, manifesting with the slightest lift of an object or the simple act of standing still for too long. It’s a constant reminder that my body requires careful attention and respect.
Scanxiety
There are moments when I want to voice my discomfort, to tell someone that it hurts somewhere, but I often hold back. I don’t want to be seen as complaining, especially when I know others face their own battles. And then there’s the looming “scanxiety” that creeps in as I prepare for my upcoming six-month appointment, the anxiety of waiting for results that can possibly alter my world in an instant.
Finding Pockets of Joy
Yet, amidst all these challenges, I find pockets of joy. I’ve learned to cherish the small victories: a sunny day, a laugh shared with a friend or the simple pleasure of my favorite cold beverage that involves strawberries. These moments remind me that life is still beautiful and worth savoring, even when the shadows of uncertainty loom.
Moving Forward
I’ve found it’s important to embrace each moment, however fleeting, and allow yourself to feel happiness every day. Life is a precious gift, and while we may carry the weight of our experiences, we can also choose to celebrate our resilience and strength.
Survivorship is not just about surviving; it’s about truly living.
Statements and opinions expressed are those of the individual and do not express the views or opinions of Susan G. Komen. This information is being provided for educational purposes only and is not to be construed as medical advice. Persons with breast cancer should consult their health care provider with specific questions or concerns about their treatment
